HOME   ARCHIVE   GALLERY   SHOP   ABOUT US      
 

 
MILLIONS MISSING GLOBAL CAMPAIGN COMES TO GREATER MANCHESTER
 

Star date: 11th May 2018

ON ME AWARENESS DAY HUGE 'VISIBILITY ACTION' EVENT IN MANCHESTER

Millions Missing
Saturday 12th May 11am-2pm
St Peter's Square, Manchester

Tomorrow, Saturday 12th May, the global campaign, #MillionsMissing is bringing its 'visibility action' to Manchester for the first time, drawing attention to millions of ME sufferers around the world. It's a disease which remains invisible and sees people missing from their own lives. Shoes have become a representation of those 'missing' and, in Salford, the shoe campaign has already begun...

Full details here...


Millions Missing Salford MediaCityUK Millions Missing Old Trafford
click image to enlarge

Over the past week, shoes have begun to be strategically placed and photographed around Salford at MediaCityUK, on the Crescent, and even over the border at United's Old Trafford.

They represent the millions of people suffering with ME who are 'missing' from their own lives. In Greater Manchester alone, almost 9,000 people have Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS), which causes dysregulation of both the immune system and the nervous system. The effects are enough to leave 25% of patients housebound or bedbound, and an estimated 75% unable to work.

Tomorrow, Saturday, 12th May, to coincide with ME Awareness Day, there's a huge 'visibility action' in St Peter's Square in Manchester, part of a global #MillionsMissing campaign happening in over one hundred cities, with speeches and a mass laying of shoes. People are asked to bring shoes and wear an item of red clothing.

Karen Morris, a patient who set up the groundbreaking national Healthwatch ME feedback project and sister project with Greater Manchester CCGs as part of the Devolution pilot, laid down the Salford shoes for the photos. Particularly poignant for her were the shoes outside the old Fire Station on the Crescent, as her great, great grandfather was Salford's first fire chief, Albert Bentley.

Karen has also produced a special vlog which will be released on the day*, in which she talks about how the system with Healthwatch and CCGs needs to be reformed; discusses problems with third sector regulation, patients' rights under the NHS Constitution, and lack of proper exclusion testing. Finally she encourages all patients to keep giving direct feedback through different organisations such as Patients Association, Patients Voices, Care Opinion, and others...

"There are too many patients without proper medical help or care, forgotten about, without a voice" she says.

Millions Missing
Saturday 12th May 11am-2pm
St Peter's Square, Manchester

For further details about the event see the Facebook event page click here or the Millions Missing website click here

For details of the Salford ME/CFS support group see www.memanchester.wordpress.com

See also Karen's YouTube channel with more vlogs and patient stories  - www.YouTube.com/isupportmeresearch 

For details of global action see http://millionsmissing.meaction.net

* The link to Karen's video is now live - click here

UPDATE: 12th May - For a full report and photos of the day - click here

Please enter your comment below:
 
 
 
Giraffe
Salford Star contact
Deli Lama
advertisement
 
Contact us
phone: 07957 982960
Facebook       Twitter
 
 
Recent comments
article: ECCLES HOMELESS SHELTER SAVING LIVES AS NHS WANT TO EVICT
The NHS might own the building but the rough sleepers, like all members of the public, own the NHS. ... [more]
article: GRADE II LISTED CROWN THEATRE IN ECCLES TO BE CONVERTED FOR APARTMENTS
Parking will be horrendous possible 100 cars looking for spaces, houses nearby will be dwarfed by high building, that road is alre... [more]
article: ECCLES HOMELESS SHELTER SAVING LIVES AS NHS WANT TO EVICT
Sadly, only if you fit THEIR CRITERIA, any other help is just used and abused, which sadly costs for those that need suppport, I b... [more]
article: ECCLES HOMELESS SHELTER SAVING LIVES AS NHS WANT TO EVICT
Banning peaople!!!! Banning volunteerers is rubbish and very biased, what is this regime. ... [more]
article: SALFORD RESIDENTS LAUNCH NEW SANTA PROTEST IN RESPONSE TO BELLWAY HOMES LEGAL THREATS TO STOP PROTESTS
Bob the regular,exactly , the Tories are ot interested in noe Tory vting areas of the city ! Secondly,they are firmly wedded ... [more]
 
 
 
 
 
Days
Hours
Minutes
Seconds
 
 
 

Donate

Help the Salford Star...

all donations welcome

 
 

More articles...

ECCLES HOMELESS TREATED TO CHRISTMAS DINNER AND FESTIVE FLU JAB

Star date: 18th December 2018

CRACKERS AND CARE AT ECCLES YOUTH CLUB

Yesterday, Salford Unemployed and Community Resource Centre and Salford Street Support hosted their now annual Christmas dinner for the homeless at Eccles Youth Club.

On the menu was a three course meal, gifts and, perhaps most precious of all, a flu jab, to 'save lives'...

Full details here...

ECCLES HOMELESS SHELTER SAVING LIVES AS NHS WANT TO EVICT

Star date: 17th December 2018

ECCLES SHELTER FILLING GAPS IN ANDY BURNHAM'S 'BED EVERY NIGHT' AS SALFORD COMMUNITY PROVIDE HUGE SUPPORT

For over a month, more than a dozen homeless people have occupied an old empty doctor's surgery in Eccles. The NHS owns the building but, ironically, wants them out and back on the freezing streets. Yet vulnerable people who have fallen through Andy Burnham's 'A Bed Every Night' net are being supported here by rough sleepers teams and grass roots outreach workers...

"We want to bring more people into this building because while we've got it we feel that we're saving people's lives" says Angela Barratt of Salford Street Support "The Salford community has been fabulous with us."

Full details here...

SALFORD CINDERELLA WOWS LOWER BROUGHTON COMMUNITY

Star date: 16th December 2018

CINDERELLA PACKS OUT GREEN GROSVENOR PARK OH YES SHE DID!

Salford's Cinderella brought panto-land to a huge packed out marquee in Green Grosvenor Park this afternoon, complete with the Prince of Mocha a Salford Royal 'but not with a three hour waiting time'...

A street dance show by JD Dance and an exhibition by the Wrestling Academy completed a full afternoon of Lower Broughton community entertainment.

Full details here...

JOY DIVISION GRAPHIC NOVEL BY BRIAN GORMAN NOW PUBLISHED

Star date: 16th December 2018

JOY DIVISION AND SEVENTIES MANC MUSIC SCENE STORY TOLD IN GRAPHIC DETAIL

Brain Gorman's much awaited graphic novel, New Dawn Fades, has finally been published, tracing the story of Joy Division and the 1970s Manc music scene. The book has been a decade in the making and, as well as the music, also delves into the Peterloo Massacre and Friedrich Engels.

Full details here...

SALFORD RESIDENTS HOLD SANTA PROTEST TO DEFY BELLWAY HOMES LEGAL THREATS

Star date: 16th December 2018

CHILDREN POST SANTA LETTERS TO BELLWAY HOMES IN DEVELOPER PROTEST

"No matter how many threats we get from multibillion pound developers we are going to exercise our legal right to make a peaceful protest..."

Despite legal threats from Bellway Homes, Swinton residents held a special Christmas protest against the developer yesterday, as children posted letters to Santa asking him to sort out the chaos that its Campbell Road site has caused to their lives.

"We are here today to make a democratic peaceful protest about the things that are going on at this site" explained Carol Boyce from the Saving Our Neighbourhood group.

Full details here...

 



written and produced by Salfordians for Salfordians
with attitude and love xxx