Next Sunday, 16th July, there's going to be a Family Fun Day at Higher Irlam Social Club featuring a bouncy castle, face painting, a lucky dip, stalls, Budgie the magician, children's characters, a photographer doing prints and keyrings, a tombola and raffle featuring great prizes including a signed Manchester United shirt.
The Fun Day is to raise money for the charity Assert, or the Angelman Syndrome Support Education and Research Trust, that supports families of people who have this very rare chromosome disorder.
Angelman Syndrome causes severe learning difficulties, and was only first identified in 1965 by a British doctor, Harry Angelman, with the condition later named after him in 1982.*
Kaidan O'Mahoney , from Irlam, has the Syndrome, and the centrepiece of the Fun Day will see his 12 year old sister, Klariece, have 13 inches of her hair cut off to donate the The Princess Trust for a wig to be made for a child undergoing cancer treatment.
"She actually wanted to shave her hair and has wanted to do this for four years but we talked her out of it" says mum Michelle "They need seven inches or above for wigs to be made for a child with cancer and we'll have 13 inches. Klariece's hair will still be very short but we can also donate quite a lot.
"Generally, the Day is to raise awareness for this really rare Angelman Syndrome, which my son has, and to raise money for Assert, a charity that helps with everything from medical research to support for families" she adds "I've tried to make it as fun as I can!"
Family Fun Day
Sunday 16th July 1pm-5pm
Higher Irlam Social Club
Cutnook Lane M44 6JS
Entrance is just £1
* For more details on Assert and Angelman Syndrome see the website – click here
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