HOME   ARCHIVE   GALLERY   SHOP   ABOUT US      
 

 
SALFORD COUPLE URGE PEOPLE TO INVEST IN ME
 

Star date: 6th November 2016

IN FOR M.E., IN FOR M.E...

M.E., or Myalgic Encephalomyelitis, is a modern epidemic affecting around 250,000 people in the UK, yet a lack of research means there is little medical help for patients. However, Karen Morris and Stu Nimmo are doing their best to change it.

Karen, an M.E. sufferer, runs a local support group, while partner Stu is constantly doing runs to fundraise for the biomedical research charity, Invest in M.E. Research. Next stop is Machu Picchu in Peru.

Full details here...


Invest in ME Research Invest in ME Research
click image to enlarge

M.E., or Myalgic Encephalomyelitis, is an illness affecting millions of people worldwide, and can cause headaches, hormonal imbalance, immunological problems, muscle weakness, intense pain, neurological and cognitive problems, and sleep problems. It's estimated to be twice as common as MS, with 250,000 people in the UK thought to have the condition...

"In fact the number is ever-growing in this modern epidemic" explains Karen Morris, who has severe M.E. "Yet a lack of biomedical research means there is no known cause or cure, so there's very little, if any, medical help or care for patients. 

"The short amount of money that is given to research tends to focus controversially on psychology, a fact that M.E. patients at large have been campaigning about for decades" she adds.

Karen, a Salfordian, runs a Greater Manchester support group based in Salford and Trafford*, and has created a national feedback survey for patients with M.E. (CFS) via Healthwatch Trafford.**

Meawhile, her partner Stu Nimmo, who works in Salford, runs in loads of events to raise funds for a small unknown biomedical research charity, Invest in ME Research (IiME), which consists of unpaid volunteers who do important research work nationally, run training events for doctors and have set up a global research network.

Stu has taken part in the Great Manchester Run, the Salford 10k and the Manchester Half Marathon, helping to raise over 700. Next up is a sponsored trek to Machu Picchu in Peru, followed by a whole list of running events next year.

Now the couple are looking for people to run alongside Stu as part of an Invest in ME team, or who simply want to donate to the charity.

For further details see Stu's Facebook page click here

To donate see the Just Giving page click here


To read more about the Invest in ME Research charity click here


*To read more about Karen's support group click here

**To see more about the Healthwatch M.E. Survey click here

Karen Morris wrote
at 06:51:51 on 19 March 2017
HEALTHWATCH ME (CFS) SURVEY 17 MARCH 2017 UK-wide report out today after 2 year wait. This was a patient feedback survey set up for the whole of England in April 2015 to improve services for patients with ME (more controversially called CFS). Now this report is out, what will happen to patients and services? http://healthwatchtrafford.co.uk/about-us/our-reports/ Response below from main contributor and local ME patient. "I am extremely grateful for Healthwatch Trafford agreeing to do a survey, and for it to include whole of England (now UK). I am also grateful for the ongoing support from organisations such as The Patient's Association, Thyroid UK, 25% ME Group, Dr Speight (Tymes Trust), Invest in ME Research and the ME Association. I was very impressed to see Healthwatch Trafford recently set up a similar survey for Fibromyalgia, which is a condition that often overlaps ME (more controversially called CFS). There have of course been some problems with the ME (CFS) survey: the time delay of two years, the use of two psychologists for a Neurological condition, and the fact that it may be used for academic research by these psychologists; the title 'Tired of Explaining' ME is not tiredness, but debilitating fatigue with other symptoms e.g. PEM, frequent prolonged infections (Canadian Consensus); only forwarding information upon request to other local HW and CCGs. However, from the start both myself and Healthwatch have been surrounded by an overwhelming amount of problems and politics which I did not expect. This has taken over my life for the past two years, having an impact on my own health and support. This includes people trying to speak on behalf of others, the under representation of severe patients and children, selected 'reps' (also who I feel may not fit the criteria of ME or typical demographic e.g. gender and age), secret meetings, lack of information and transparency, copycatting and general disrespect for the individual rights of patients under the NHS Constitution. It has also highlighted general problems with the post-Francis Report system for all patients (not just those with ME). These include the process of giving feedback and it being taken seriously; The regulation and accountability of the NHS at every level; Complaints being ignored and/or denied; Being able to speak up politely with evidence, without the risk of being viewed and treated negatively and feeling 'blacklisted'; Local Government; and the regulation of the third sector, amongst other problems. I have sent my concerns and evidence to the media and government in the hope that this will one day change as patient's lives continue to be at risk, including children. Lessons have not been fully learnt from Mid-Staffordshire and subsequent events. That said, I believe that patients with ME (and other conditions) should keep giving polite feedback and evidence direct to watchdogs and similar organisations if we want positive change to happen. We are a very large group of people with a valuable voice. Thank you to everyone who participated." Karen Morris ME CFS Manchester www.memanchester.wordpress.com www.facebook.com/groups/memanchester

Please enter your comment below:
 
 
 
Salford Star Hoodies
Salford Star contact
Deli Lama
advertisement
 
Contact us
phone: 07957 982960
Facebook       Twitter
 
 
Recent comments
article: COMMUNITY HAMMERS SALFORD CITY COUNCIL OVER BUILE HILL PARK HOUSING PROPOSALS
First I would like to say a very big thank you to Steve and the star for being on the ball,yet again and highlighting this plan.I ... [more]
article: COMMUNITY HAMMERS SALFORD CITY COUNCIL OVER BUILE HILL PARK HOUSING PROPOSALS
This reminds me of Commorra (Mafia) in Naples after the earthquakes. Millions of pounds SQUANDERED by bent city officials passing ... [more]
article: CANNABIS SHOP IN SALFORD OPENS
I've been going to this shop for nearly 2yrs now and I suffer for anxiety and panic attack and have arthritis in my knee and very ... [more]
article: CANNABIS SHOP IN SALFORD OPENS
The more I look at life, the more cynical I get. We always seem to be getting sold the latest wonder food, drink or supplement ..... [more]
article: CANNABIS SHOP IN SALFORD OPENS
I have Post Polio syndrome, which means fatigue , weakness n pain. I tried cbd oil , tiny dose. Instant relief from brain fog - bu... [more]
 
 
 
 
 
Days
Hours
Minutes
Seconds
 
 
 

Donate

Help the Salford Star...

all donations welcome

 
 

More articles...

SALFORD CITY COUNCIL SACKS URBAN VISION

Star date: 24th May 2018

SALFORD COUNCIL ENDS CONTROVERSIAL URBAN VISION CONTRACT

Salford Council is to end its controversial contract with joint venture company Urban Vision, after years of accusations that the company was grossly profiteering from public money projects.

Salford Council has a 19.9% stake in Urban Vision but up until recently never even got a dividend from the profits. The Council is set to end the 'joint venture' when the current contract runs out in 2020.

Full details here...

COMMUNITY HAMMERS SALFORD CITY COUNCIL OVER BUILE HILL PARK HOUSING PROPOSALS

Star date: 23rd May 2018

COUNCIL UPS PRICE OF BUILE HILL MANSION PROJECT TO OVER 20MILLION AS PLANS MET WITH SCORN FROM COMMUNITY

Last night, a packed stormy meeting of the Claremont and Weaste Community Committee left Salford City Council in no doubt that any plans to build houses in Buile Hill Park as part of a deal to restore the Grade 2 listed Mansion will be met with fierce opposition.

Salford Council's Assistant Director of the Environment revealed to the meeting that Salford Red Devils Foundation, one of the driving partners of the project, hadn't even signed the controversial Memorandum of Understanding yet and that the 1.6million cost of restoring the Mansion would have to be met with 1million a year to sustain it, giving a figure of over 20million.

Full details here...

SONGS AND CEREMONIES AS MANCHESTER REMEMBERS ARENA ATTACK

Star date: 22nd May 2018

ONE YEAR ON...

One year on from the Manchester Arena attack, today sees the Manchester Together With One Voice event this evening in Albert Square from 7pm to 9pm, and Remembering Together, a civic reception this afternoon at Manchester Cathedral.

Meanwhile, local band Prose and the Manchester Survivors Choir have teamed up to raise money for those affected by the Manchester Arena bomb, with the track A City United.

Full details here...

ROLLERBLADING IS TEST OF MANCHESTER AND SALFORD SUCCESS SAYS COUNCIL STRATEGIC DIRECTOR

Star date: 21st May 2018

FORGET ABOUT JOBS, HOMELESSNESS AND AFFORDABLE HOUSING ROLLERBLADERS IS WHERE CITIES' REGENERATION IS AIMED!

'Jobs priority "just doesn't echo in the room any more"...'

Never mind jobs, homelessness and affordable housing, all Manchester and Salford regeneration is, apparently, aimed at attracting rollerbladers, Eddie Smith, Strategic Director at Manchester City Council, told a Built Environment Network conference last week; and that the jobs priority "just doesn't echo in the room any more". At the same conference, the Development Manager for Salford City Council echoed the similar sentiments.

Full details here...

BLANEY TO PLAY CASTLE HOTEL MANCHESTER

Star date: 21st May 2018

FROM SALFORD TO BERLIN TO MANC

Blaney and special guests
Saturday 26th May 7:30pm
Castle Hotel, Manchester

Blaney, the Salford band fronted by Ed Blaney, having just returned from two successful gigs in Berlin, play the Castle Hotel Manchester this Saturday in what should be a storming set.

Full details here...

 



written and produced by Salfordians for Salfordians
with attitude and love xxx